Phone Toll Free Number: (800) 777-8189
Phone Toll Free Number: (800) 777-8189
St. Paul
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Meetings offer education, encouragement, emotional support, and allow for open discussion about managing and living with spondyloarthritis.

Upcoming Meeting(s)

  • Saturday, February 1, 2020 
    1 pm – 3 pm

Meeting Location

  • 3M Community Room
    Sun Ray Library
    2105 Wilson Ave.
    St. Paul, MN 55119

Social Media

Join our social media channels:

Facebook: @spondylitis 

Twitter: @spondylitis 

Instagram: @spondylitis 

YouTube: Spondylitis

LinkedIn: Spondylitis Association of America

Topic: Roundtable Discussion

Leadership

Jordan Helmer

Jordan Helmer

About St. Paul's Support Group Leader

My name is Jordan Helmer. I was born and raised in Stillwater, Minnesota. I recently graduated from Iowa State University with a major in genetics. I am currently working for Emergency Care Consultants as an emergency department scribe and applying to medical school for the class of 2020. Outside of work, I enjoy watching movies, playing board games and spending time with friends and family.

My AS Journey: I was plagued in my early teens with chronic hip and lower back pain, as well as a bad bout of iritis. My pain began to compromise my ability to do what I loved: play sports and be active. As the years went on, the pain metastasized into my middle back, shoulders and knees. It was then that I decided to try to find an answer for my mysterious pain. Whether it was my pediatrician, chiropractor or physical therapist, no one was able to pinpoint what was going on. Confused and frustrated, I gave up on my search.

I endured chronic pain and frustration until the fall of 2017, when I stumbled upon a vlog of a man sharing his recent ankylosing spondylitis diagnosis. It suddenly dawned on me that I had all of the symptoms this man was describing. I scheduled an appointment with a rheumatologist the next day and in May of 2018, was diagnosed with ankylosing spondylitis.

Nowadays, I am managing my symptoms with an NSAID, eating healthy and regular exercise such as weight lifting, running, playing sports and yoga.

My vision for the support group is to be informational, but also supportive and understanding because no one should have to fight spondylitis alone. In addition, I hope to spread awareness about this disease, so that children, young adults and adults are able to be diagnosed earlier before serious complications arise.

I hope to see you at our next meeting!

Want to Start a New Support Group?

We’d love to have you join our team of passionate volunteers leading our spondylitis educational support groups! Learn more about how to get started here, and reach out to programs@spondylitis.org