Since its inception, SAA has been committed to research, from funding scientific meetings to launching the first genetic research study in the United States on ankylosing spondylitis and related diseases. SAA continuously supports innovative research and researchers. As an early leader in the quest for a cure, SAA has funded a spondyloarthritis patient registry, studies on the microbiome in spondyloarthritis, life impact studies, as well as a health care professional educational CME programs such as the MRI (magnetic resonance imaging) program to help radiologists and rheumatologists work together to hasten diagnosis.
We know that educating the patient on their condition, discussing treatment options and their benefits, as well as offering support and encouragement, improve disease outcomes. We provide medically accurate brochures for physicians to share with their patients, access to educational support groups, invitations to patient educational seminars – with presentations from leading rheumatologists and other experts, a website that is the most comprehensive hub of resources and accurate information for people impacted by spondyloarthritis, and much more.
SAA’s Advocacy Committee invites you to join our efforts to effect positive change by taking an active role. Stay informed, raise awareness, and contact your elected representatives! Our strategic priorities include:
The average time from onset on symptoms to diagnosis is 7 to 10 years. Delays in getting a proper diagnosis equate to prolonged absence of treatment. The earlier the diagnosis the better the health outcomes. Our priorities for increasing awareness include:
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