Community Voices
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Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project. 

We’d love your story as well! Send it to us at Programs@spondylitis.org

Tell A Story with SAA Storytellers, Your Stories on Stage! Send Us Your Story Pitch!

Are you interested in being a part of SAA Storytellers, Your Stories on Stage?

SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).

ByEdem & Isaac

Your Stories: Talking to Your Kids About SpA by Edem…

On one of the many online forums for people living with SpA,…

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ByChristi Taylor-Gentry

Your Stories: A Sisterhood of Strength for Black Women with…

The relief was because I had struggled with unbearable pain for years…

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ByAnonymous Author

Your Stories: A Bit of Positivity

It’s been seven years since my diagnosis of ankylosing spondylitis. For such an anniversary I was inspired to relay this personal story towards diagnosis.

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ByBrian Goosen

Your Stories: My 7-Year AS Diagnosis Anniversary

It’s been seven years since my diagnosis of ankylosing spondylitis. For such an anniversary I was inspired to…

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ByCat Bryan

Your Stories: A Diver’s Tale: Resilience and Reinvention in the…

I started gymnastics when I was about four years old. When I…

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ByMolly Bylsma

Your Stories: Rough Seas, Smooth Sailing, and Everything in Between

I am just embarking on my long journey with ankylosing spondylitis. My symptoms began just under a year…

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