Phone Toll Free Number: (800) 777-8189
Phone Toll Free Number: (800) 777-8189
Community Voices
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Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project. You will also find episodes of “This AS Life Live!” an online talk show for people with AS hosted by Dan Reynolds – an AS patient and lead singer of the rock band Imagine Dragons.

We’d love your story as well! Send it to us at Programs@spondylitis.org

BySasha Simon

Sasha Simon

My name is Sasha and I am a 26-year-old living in Sydney, Australia. My ankylosing spondylitis (AS) journey began just over six years ago when I was walking to a university class and had a flare-up so…

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ByAntoinette

Antoinette

Antoinette is a 10 year old girl suffering from Ankylosing Spondylitis. At just two and a half years old, Antoinette would wake up in the middle of the night screaming and saying bugs were biting her back.…

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ByMary Jo Bacorn

Mary Jo Bacorn

My name is Mary Jo Bacorn and I want to share my ankylosing spondylitis (AS) journey. In retrospect, I likely had AS since childhood. I was…

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ByLucas Absler

They used to call me “Glass.” Now they call me…

When I was younger, I played baseball. I would often be sidelined…

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ByJim Weatherhead

Four Corners Ride for Hope

I love to ride motorcycles. Feeling my body in motion on any type of two-wheeled contraption is a deep-seated passion that started with the first…

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ByShannon Geld

Shannon Geld

Learning to accept my body for what it is and how it behaves is how I survive daily life with ankylosing spondylitis. It is important for me to listen to my body. When it is feeling better,…

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