Community Voices
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Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project. You will also find episodes of “This AS Life Live!” an online talk show for people with AS hosted by Dan Reynolds – an AS patient and lead singer of the rock band Imagine Dragons.

We’d love your story as well! Send it to us at Programs@spondylitis.org

BySara Shaw

Seeking the Light at the End of this Tunnel

I do not have all the answers, but I know that we will get through this, and while…

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ByRachel Zaimont

Walk AS One Helps the Spondyloarthritis Community Find Their “Happy…

“There comes a point where you either subdue to it, or you…

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Flowing Through My Ankylosing Spondylitis Diagnosis

In 2018, I was diagnosed with ankylosing spondylitis and other related diseases. While there was a sense of relief that I finally received answers, I…

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ByJessica Thomas

My Never-Ending Story: Surviving AS, RA, and COVID-19

My name is Jessica Thomas, and I am a wife, a mother, a daughter, a sister, a friend…

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ByShane Derbyshire

The Tricky (And Long) Road to Diagnosis

Hi, my name is Shane Derbyshire. I am a chiropractor from Norwich (in the UK) and I was…

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ByPhilip Donlay

Diversion Therapy

I don’t like having Ankylosing Spondylitis. It’s a crummy affliction. It hurts and makes my life miserable, painful, and then I resort to profanity. No really, I literally use every bad word I know and for a…

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