Community Voices
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Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project. You will also find episodes of “This AS Life Live!” an online talk show for people with AS hosted by Dan Reynolds – an AS patient and lead singer of the rock band Imagine Dragons.

We’d love your story as well! Send it to us at Programs@spondylitis.org

ByJessica Thomas

My Never-Ending Story: Surviving AS, RA, and COVID-19

My name is Jessica Thomas, and I am a wife, a mother, a daughter, a sister, a friend…

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ByShane Derbyshire

The Tricky (And Long) Road to Diagnosis

Hi, my name is Shane Derbyshire. I am a chiropractor from Norwich (in the UK) and I was…

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ByPhilip Donlay

Diversion Therapy

I don’t like having Ankylosing Spondylitis. It’s a crummy affliction. It hurts and makes my life miserable, painful, and then I resort to profanity. No really, I literally use every bad word I know and for a…

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ByFion

My AS Is a Chameleon

I started having hip pain that came and went when I was around 26. That was 13 years ago. The pain was so severe that…

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ByHelgi Olafson

Acceptance and Adaptation

Helgi Olafsen is a spondyloarthritis warrior who is also a seasoned trail runner who competes at the highest levels of the sport and uses the exposure he garners to support the causes he believes in. The Triple…

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BySuzanne Knauer 

Overseas Rollercoaster: My COVID-19 Journey 

This is my story about having AS and being infected with COVID-19. 

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