Community Voices

Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project. 

We’d love your story as well! Send it to us at

Tell A Story with SAA Storytellers, Your Stories on Stage! Send Us Your Story Pitch!

Are you interested in being a part of SAA Storytellers, Your Stories on Stage?

SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).

ByMolly Bylsma

Your Stories: Rough Seas, Smooth Sailing, and Everything in Between

I am just embarking on my long journey with ankylosing spondylitis. My symptoms began just under a year…

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ByAlexandra Fendrich

Your Stories: How Online Communities Steered Me Toward an Answer…

It was 4:02 in the morning, several hours before my alarm was…

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ByRuby Fryman

Your Stories: In Honor of Robert Nance

It is no secret that spondyloarthritis causes many physical challenges that vary in severity from person to person.…

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ByAriel Gonzales

Your Stories: It All Started with a Dental Appointment…

I am feeling the best I have in months. Once I’ve recovered from this surgery and my axSpA…

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ByRuby Fryman

Caregiving as a Labor of Love

Robert Nance lived with severe ankylosing spondylitis in addition to other health complications. He sadly passed away on September 3, 2023, at the age of…

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ByKaren Ladenheim

What I’ve Learned About Traveling with Biologics

Karen Ladenheim takes Humira for ankylosing spondylitis, Crohn’s disease, and uveitis. She is a mechanical engineer who works…

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