Serving the Spondyloarthritis Community

Serving the Spondyloarthritis Community

Introducing Spondycast, SAA’s New Podcast Series!

Looking for an exciting way to stay informed and motivated about spondyloarthritis? Spondycast offers the newest source of information by leading experts in the field, who will share their knowledge and experience. Whether you are a patient, a caregiver, or someone who wants to learn more about spondyloarthritis, Spondycast is the perfect place.

SAA’s Fall Virtual Patient Educational Seminar 2023

Learn the latest treatment and research updates, listen to a talk about diet & nutrition, and more!

excuse me,

Spondy What?

Spondyloarthritis affects more people than Amyotrophic Lateral Sclerosis (ALS), Multiple Sclerosis (MS), and Rheumatoid Arthritis, yet it remains relatively unknown.

  • Nearly 1 in 100 Americans have
    spondyloarthritis

  • Spondyloarthritis is the most overlooked cause
    of persistent back pain in young adults

  • 1 in 4 patients have had to change
    careers due to spondyloarthritis

  • 1 in 4 patients have seen five or more
    health professionals in search of a diagnosis

  • The typical age of onset is
    between 17 and 45

10

als (30k)

20

MS (400 k)

50

Rheumatoid Arthritis (1.3 million)

90

Spondyloarthritis (3.2 million)

54% of patients remain undiagnosed for at least 5 years

75% of kids with juvenile spondyloarthritis experience moderate to severe pain

Could I Have 
Spondylitis?

Could I Have Spondylitis?

Your pain may be caused by spondylitis. Watch our new awareness video and take the quiz.

Learn more
Learn About
Spondyloarthritis

Learn About Spondyloarthritis

Spondyloarthritis is a relatively unknown disease but it affects 1 in 100 Americans..

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Locate A
Rheumatologist

Locate A Rheumatologist

Use our directory to locate a patient recommended and board certified rheumatologist.

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Patient Resources
& Support

Patient Resources & Support

The most comprehensive library of spondylitis information and educational materials.

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Why Join The
Community?

Why Join The Community?

Connect with others because no one should have to face spondylitis alone.

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Get Involved

Get Involved

There are many ways to get involved in the community. Which one’s right for you?

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Tell A Story with SAA Storytellers, Your Stories on Stage!
Send Us Your Story Pitch!

Are you interested in being a part of SAA Storytellers, Your Stories on Stage?

SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).

Volunteer Fundraiser Spotlight

Support SAA and Curt Rocca via Charity Golf Tournament

SAA and Curt Rocca are working together for a second season to raise funds via The L5 Investments Capital Cup, scheduled for September 15-17, 2023. Curt, whose son Grant was diagnosed with ankylosing spondylitis a couple of years ago, will be on one of two teams competing to share in a $120,000 prize fund that is split amongst the winning team’s players and donated to a cause of their choice.

One of our many

Community Voices

Spondyloarthritis affects more people than Amyotrophic Lateral Sclerosis (ALS), Multiple Sclerosis (MS), and Rheumatoid Arthritis, yet it remains relatively unknown.

Community Voices:

Each individual affected by spondyloarthritis has their own unique story. We at SAA believe that each and every story can be a source of inspiration and empowerment and hope you enjoy reading through our collection. We’d love to share your story as well! Send it to us at programs@spondylitis.org.

Read more
Learn About Spondyloarthritis:
Could I have Spondyloarthritis?
Get Involved!
robert and ruby image

By Ruby Fryman

Your Stories: Caregiving as a Labor of Love

Robert Nance lived with severe ankylosing spondylitis in addition to other health complications. He sadly passed away on September 3, 2023, at the age of 51. His sister, Ruby Fryman, supported him in his final years. In honor of National Family Caregivers Month, we asked her to share her experiences as a caregiver. Her account was edited for length and clarity.

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