Phone Toll Free Number: (800) 777-8189
Phone Toll Free Number: (800) 777-8189
Community Voices

Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project. You will also find episodes of “This AS Life Live!” an online talk show for people with AS hosted by Dan Reynolds – an AS patient and lead singer of the rock band Imagine Dragons.

We’d love your story as well! Send it to us at

ByTeresa Mussmann

Teresa Mussmann

The first time I walked into a tae kwon do class, I walked in with my cane and my little dog. Master Evan Nixon, the owner of Mellennia Tae Kwon Do, thought I was just there to…

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ByTom Neal

Don’t Fall!

By the year 2000 I was noticeably “bent over” in my upper thoracic and cervical spine. The local, well-regarded neurosurgeon said he could “straighten me up?”, but the mortality rate was approximately 50%. His last words to…

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ByMichael Leach

Michael Leach

At the time I received my diagnosis, I was on the brink of my twentieth birthday. I was a healthy and fit young man, just starting my college basketball career, looking forward to a long life of…

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ByKathleen Barth

Kathleen Barth

Ankylosing Spondylitis What the heck is that? I can’t even say it. (Pronounced ank-kih-low-sing spon-dill-eye-tiss)

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ByRoz Tolliver

Cursed And Gifted With AS

Yay! I have a chronic, debilitating, painful, and incurable disease! My lifelong nightmare was over when I was diagnosed with Ankylosing Spondylitis and prescribed medication…

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ByJames Magdaleno

The Bully

We all have a Bully in our lives, whether it be a physical person or in the form of pain or anguish, but we all have one. Since childhood my Bully has taken on many forms and…

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