Community Voices
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Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project. You will also find episodes of “This AS Life Live!” an online talk show for people with AS hosted by Dan Reynolds – an AS patient and lead singer of the rock band Imagine Dragons.

We’d love your story as well! Send it to us at Programs@spondylitis.org

ByFion

My AS Is a Chameleon

I started having hip pain that came and went when I was around 26. That was 13 years ago. The pain was so severe that…

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ByHelgi Olafson

Acceptance and Adaptation

Helgi Olafsen is a spondyloarthritis warrior who is also a seasoned trail runner who competes at the highest levels of the sport and uses the exposure he garners to support the causes he believes in. The Triple…

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BySuzanne Knauer 

Overseas Rollercoaster: My COVID-19 Journey 

This is my story about having AS and being infected with COVID-19. 

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ByTom House

I Had COVID-19

I had COVID-19. Here is how that went. 

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ByKatie Phares

My Journey to Hope

My word of advice to those still looking for answers: Do not give up or give in. If you feel something is being overlooked or…

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ByGail Wright

Avoiding the ER Rollercoaster

In December of 2013, that all changed when I experienced my first bout of costochondritis that led to my diagnosis of AS. Since 2014, I’ve gone through five lumbar surgeries, bilateral carpal tunnel releases, a…

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