Phone Toll Free Number: (800) 777-8189
Phone Toll Free Number: (800) 777-8189
Community Voices
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Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project. You will also find episodes of “This AS Life Live!” an online talk show for people with AS hosted by Dan Reynolds – an AS patient and lead singer of the rock band Imagine Dragons.

We’d love your story as well! Send it to us at Programs@spondylitis.org

ByShannon Geld

Shannon Geld

Learning to accept my body for what it is and how it behaves is how I survive daily life with ankylosing spondylitis. It is important for me to listen to my body. When it is feeling better,…

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ByRachel Zaimont

Curved Spine, Clear Heart: Dr. Muhammad Asim Khan’s Advice for…

It came down to a matter of taste for Muhammad Asim Khan,…

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ByTeresa Mussmann

Teresa Mussmann

The first time I walked into a tae kwon do class, I walked in with my cane and my little dog. Master Evan Nixon, the owner of Mellennia Tae Kwon Do, thought I was just there to…

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ByTom Neal

Don’t Fall!

By the year 2000 I was noticeably “bent over” in my upper thoracic and cervical spine. The local, well-regarded neurosurgeon said he could “straighten me up?”, but the mortality rate was approximately 50%. His last words to…

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ByMichael Leach

Michael Leach

At the time I received my diagnosis, I was on the brink of my twentieth birthday. I was a healthy and fit young man, just starting my college basketball career, looking forward to a long life of…

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ByKathleen Barth

Kathleen Barth

Ankylosing Spondylitis What the heck is that? I can’t even say it. (Pronounced ank-kih-low-sing spon-dill-eye-tiss)

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