Phone Toll Free Number: (800) 777-8189
Phone Toll Free Number: (800) 777-8189
Community Voices
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Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project. You will also find episodes of “This AS Life Live!” an online talk show for people with AS hosted by Dan Reynolds – an AS patient and lead singer of the rock band Imagine Dragons.

We’d love your story as well! Send it to us at Programs@spondylitis.org

ByGail Wright

Avoiding the ER Rollercoaster

In December of 2013, that all changed when I experienced my first bout of costochondritis that led to my diagnosis of AS. Since 2014, I’ve gone through five lumbar surgeries, bilateral carpal tunnel releases, a…

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ByJordan Sorrick

Becoming an Ironman

Combating ankylosing spondylitis, and familial adenomatous polyposis, has led to significant moments of personal development. The constant adaptation with this disease has led to a journey of building deeper relationships with others and has helped me develop…

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ByRob Yuen

SpA and Physical Therapy: A Patient Advocate’s Story

Have you ever found yourself asking the question, “What do physical therapists actually do and how might they…

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BySasha Simon

Sasha Simon

My name is Sasha and I am a 26-year-old living in Sydney, Australia. My ankylosing spondylitis (AS) journey began just over six years ago when I was walking to a university class and had a flare-up so…

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ByAntoinette

Antoinette

Antoinette is a 10 year old girl suffering from Ankylosing Spondylitis. At just two and a half years old, Antoinette would wake up in the middle of the night screaming and saying bugs were biting her back.…

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ByMary Jo Bacorn

Mary Jo Bacorn

My name is Mary Jo Bacorn and I want to share my ankylosing spondylitis (AS) journey. In retrospect, I likely had AS since childhood. I was…

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