Community Voices
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Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project. 

We’d love your story as well! Send it to us at Programs@spondylitis.org

Tell A Story with SAA Storytellers, Your Stories on Stage! Send Us Your Story Pitch!

Are you interested in being a part of SAA Storytellers, Your Stories on Stage?

SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).

ByEmma Matthews

Finding My Culprit, Nr-AxSpA

When I first learned about nr-axSpA, I was terrified by the idea that I might end up in a wheelchair.

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ByHeidi Waltz

Diet and Exercise: My Game Changer

I noticed that whenever my stress and anxiety levels increased, my inflammation markers started to climb, too. I read several books about the immune system…

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ByJanelle Dix

My Exceptional Dad

I want to share the story of my dad’s life and how his ankylosing spondylitis (AS) impacted him and our family, but ultimately how his exceptional spirit outshone his disease.

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ByRick Phillips

I Was the Fat Kid

There comes a time in every person’s life when they adopt what they come to believe about themselves. At some point in my childhood, I…

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ByLaRiena Ferguson

Lifting the Weight of AS

I used to be a very angry person because I hurt all the time. Now, it takes a lot to even make me agitated. I’m…

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ByDanielle Noble

Spondyloarthritis, My Support Systems, and Me

When I was nine years old, I went to the doctor for a mysteriously swollen knee, one that I couldn’t remember hitting on anything and…

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