Community Voices

Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project. 

We’d love your story as well! Send it to us at

Tell A Story with SAA Storytellers, Your Stories on Stage! Send Us Your Story Pitch!

Are you interested in being a part of SAA Storytellers, Your Stories on Stage?

SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).

BySarah Louden, MHA, MBA

Living Life to the Fullest: Finding Hope and Purpose in…

Sarah Louden, MHA, MBA is the Founder and…

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ByAndrew West

To everybody starting their diagnosis journey, there is a light…

My story begins in the early 1980s. I like to think I…

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ByMia Rust

Your Stories: One Teen’s AS Journey from Disbelief to Diagnosis…

My name is Mia Rust, and I was diagnosed with ankylosing spondylitis…

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ByMarcia Freeman

Finding Joy and Healing through Yoga Practice

Marcia D. Freeman, M.A. is a Doctoral Student at Ball State University and has been an Ordained Nazarene…

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BySarah Ziegler

A Story of Hope – You Are Not Alone

I grew up extremely active, and played soccer starting at five years old, all the way through college.…

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ByJulie Nielsen

Your Stories: Pink Horns, Project Management, and Radiofrequency Magic

We have a job to do. We must do what we can to manage our physical trajectories, knowing…

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