Community Voices
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Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project. 

We’d love your story as well! Send it to us at Programs@spondylitis.org

Tell A Story with SAA Storytellers, Your Stories on Stage! Send Us Your Story Pitch!

Are you interested in being a part of SAA Storytellers, Your Stories on Stage?

SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).

ByIurii Gryga

I Fled the War in Ukraine. Now I Must Find…

I started having symptoms of ankylosing spondylitis (AS) 10 years ago after…

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ByCasey Rotondi

Tackling AS Pain, Postpartum

After giving birth to my second child in July of 2020, I was in constant pain. I brushed it off, chalking it up to a…

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ByKim Pearson

A Rough-Hewn Kind of Beauty

Some time ago, a phone conversation with my BlogHer colleague Rita Arens turned toward my experience of having ankylosing spondylitis (AS), an arthritic condition that…

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ByEmma Matthews

Finding My Culprit, Nr-AxSpA

When I first learned about nr-axSpA, I was terrified by the idea that I might end up in a wheelchair.

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ByHeidi Waltz

Diet and Exercise: My Game Changer

I noticed that whenever my stress and anxiety levels increased, my inflammation markers started to climb, too. I read several books about the immune system…

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ByJanelle Dix

My Exceptional Dad

I want to share the story of my dad’s life and how his ankylosing spondylitis (AS) impacted him and our family, but ultimately how his exceptional spirit outshone his disease.

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