Welcome to our virtual community! Start by browsing through the personal stories featured here.
We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project.
We’d love your story as well! Send it to us at Programs@spondylitis.org
Are you interested in being a part of SAA Storytellers, Your Stories on Stage?
SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).
My word of advice to those still looking for answers: Do not give up or give in. If you feel something is being overlooked or…
In December of 2013, that all changed when I experienced my first bout of costochondritis that led to my diagnosis of AS. Since 2014, I’ve gone through five lumbar surgeries, bilateral carpal tunnel releases, a…
Combating ankylosing spondylitis, and familial adenomatous polyposis, has led to significant moments of personal development. The constant adaptation with this disease has led to a journey of building deeper relationships with others and has helped me develop…
Have you ever found yourself asking the question, “What do physical therapists actually do and how might they…
My name is Sasha and I am a 26-year-old living in Sydney, Australia. My ankylosing spondylitis (AS) journey began just over six years ago when I was walking to a university class and had a flare-up so…
Antoinette is a 10 year old girl suffering from Ankylosing Spondylitis. At just two and a half years old, Antoinette would wake up in the middle of the night screaming and saying bugs were biting her back.…
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