MLB athlete joins the fight…

MLB athlete joins the fight against AS

March 8, 2021
Ryan Miyamoto

Major league baseball player and AS patient Rico Brogna heads a national promotional campaign to raise awareness of (and funds for) AS research. Over the next five years, the “R.B.I. Challenge” campaign generates $90,000 for research and brings major media coverage in cities across the county.

Jane Bruckel is invited to the White House for a news conference where President Bill Clinton endorses genetic privacy legislation. The invitation is a result of SAA’s advocacy efforts for legislation to protect people against genetic discrimination.