Forty years ago, a very small but determined group of volunteers embarked on a journey to create a community where people impacted by a “disease with a funny name” could receive support, education, push for more funding for research to better understand the disease, and be represented within a very long list of social causes facing the American public. What they envisioned at that point and time was undoubtedly daunting and humbling. But their recognition that the needs for people impacted by spondyloarthritis were not being met, coupled with their determination, changed the landscape of the disease in this country, forever.
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