An estimated 300,000 children or nearly 4 in every 1,000 youth in the U.S. lives with some type of chronic arthritis.
Juvenile Spondyloarthritis (JSpA), also known as Juvenile Spondyloarthropathy, is the medical term for a group of childhood rheumatic diseases, which cause arthritis before the age of 16 and may span through adult life.
Why Awareness Matters
Raising awareness is the first step towards understanding and combating juvenile arthritis. Many people are unaware that children can suffer from arthritis, often leading to delays in diagnosis and treatment. Increased awareness helps:
Why Supporting Research Matters
Research is the cornerstone of progress in the fight against juvenile arthritis. By supporting and funding research, we can:
How You Can Help
Spread the Word: Share information about JA with your friends, family, and social networks.
New Spondykids Coloring Book!
Did you know that coloring can be good for your health? Coloring books are more than just fun activities. They are also reported to have other health benefits such as promoting mindfulness, reducing stress, and improving motor skills. That’s why we’re excited to share our new Spondykids Coloring Book.
Storytime with Roz 2022
With a warm smile and comforting voice, Spondylitis Advocate Roz Tolliver returns for a new Storytime reading session of You Are Enough. Written by Margaret O’Hair and down syndrome advocate and viral sensation Sofia Sanchez, You Are Enough is a book about inclusion, regardless of how you look, where you live, or what you can or can’t do.
“ Because we are all beautiful, just as we are.” – Sofia Sanchez
The Notebook: A Mother’s Guide for Coping When Your Child Lives with SpA
Just as our kids look to us for help in acknowledging and processing their emotions, we need to look to others for support in coping with supporting a child with an autoimmune illness.
Life can present unforeseen challenges that we must adapt and adjust to maintain a balanced life. When an autoinflammatory illness enters the equation of life, it can create a mix of emotions that can leave one feeling scared, hopeless, and frustrated. But the good news is, you are not alone. Teens such as Andrew Roe are choosing to stay motivated and focused on the future ahead. Roe copes with a chronic illness, but refuses to be defined by it.
How can you stay positive and motivated about the future? Here are some tips Roe shared with SAA on how he stays motivated.
Juvenile Spondyloarthritis (JSpA) and Juvenile Psoriatic Arthritis (JPsA) Webinar and Podcast
Watch our patient focused webinar in the Capes series. Juvenile Spondyloarthritis (JSpA) and Juvenile Psoriatic Arthritis (JPsA). We discuss the spectrum of JSpA and JPsA, the genetic risk factors, the symptoms, and the appearances of the diseases. In addition, we provide tips on managing the disease and the role of diet and exercise as part of your overall treatment options. Patients and their families share their journeys, including the challenges, successes, and hopes.
Juvenile Spondyloarthritis (JSpA) and Juvenile Psoriatic Arthritis (JPsA) Webinar and Podcast
Watch our clinician focused webinar, Juvenile Spondyloarthritis (JSpA) and Juvenile Psoriatic Arthritis (JPsA) presented by Dax Rumsey, MD, MSc, FRCP(C); Pamela Weiss, MD, MSCE; and Matthew Stoll, MD, PhD, MSCS. As the first of four topics covered in CAPES (Clinician and Patient Education Series), this webinar discusses the spectrum and classification of JSpA and JPsA, imaging pitfalls, and the treatments and outcomes for disease management.
The CDC recommends that everyone over the age of 12 should be vaccinated against COVID-19. But for adolescents living with a rheumatic disease such as juvenile spondyloarthritis, what are the risks and benefits? What other factors need to be considered? Pediatric Rheumatologist Dr. Pamela Weiss shares her insights.
SAA Support Group Leader (Merced) Roz Tolliver reads Little Tree, a warm, touching, and healing story about a tree that loses some of its branches in a storm. Little Tress provides an affirming and encouraging message for children who are facing a chronic illness or other life-changing condition.
“When you are asleep in the place of dreaming, wonderful getting better things can happen.”
– Author Joyce C. Mills
We spoke with author Hannah Moskowitz about her young adult fiction novel, Sick Kids in Love to discuss what it means to navigate life and love with an invisible illness.
“You have to be overcoming it [illness] or you have to be completely disconnected from it. God forbid it be an important part of your identity that you’re just living with.”
– Author Hannah Moskowitz
Dr. Pamela Weiss, MD MSCE discusses treatment strategies for children with peripheral arthritis and/or enthesitis.
Dr. Pamela Weiss, MD MSCE discusses expectations for initial evaluation and treatment of your child with axial arthritis.
Dr. Pamela Weiss, MD MSCE discusses pain and complications that arise during the management of spondyloarthritis.
Our Juvenile Spondyloarthritis brochure will give you all the information you need about the primary signs/symptoms and the various treatments and techniques to manage spondyloarthritis in children and teens. Available in both English and Spanish.
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