Natasha Tehan, Founder and Executive Director of Take a Pain Check, and Maggie Douglas, the organization’s Global Development Coordinator, share their personal stories and discuss their mission to empower youth and young adults living with rheumatic disease.
Helgi Olafson, endurance athlete and ultra runner, discusses his latest project including the Arizona Monster 300 Endurance Run and a film documenting his 7-day journey while increasing awareness about ankylosing spondylitis.
Victoria Killian, a member of SAA’s Advocacy Committee, discusses steps to take if your treatment is denied.
Pediatric rheumatologist Pam Weiss, MD, and Parent Advocate Emily Neu discuss juvenile spondyloarthritis and its treatment, and the Back Off JSpA research study.
Robin Dore, MD, rheumatologist and member of SAA’s Advocacy Committee, discusses how patients can advocate for themselves while working with their physicians and health insurance to get needed healthcare.
Ultramarathon runners and endurance athletes Helgi Olafson and Brandon Robert Hozack discuss their journey with spondyloarthritis, their advocacy and awareness efforts, and how they overcome their challenges with AS.
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