Heidi Waltz, SAA support group leader and patient advocate, shares her firsthand experience attending the American College of Rheumatology’s Rheum Advocacy Conference, offering practical insights and inspiration for anyone interested in using their voice to advance policies that improve the lives of people living with spondyloarthritis.
James Roberson shares his experience of living with ankylosing spondylitis and his journey to becoming the leader of SAA’s Washington, D.C. Support Group.
Retired rheumatologist Dr. W. Patrick Knibbe shares his unique perspective as both a physician and a patient living with spondyloarthritis.
Vince Gagliardi shares his journey living with axial spondyloarthritis (axSpA), from navigating diagnosis and daily challenges to becoming an advocate through storytelling.
Kyle Settles, an educator and father living with spondylitis, shares his journey of advocating for his health, balancing fatherhood and chronic illness, and cultivating joy, empathy, and resilience while navigating life in rural Alaska.
In Part 2 of her conversation, Jenifer Forbes, former Team USA rower, reflects on life after elite rowing, sharing how she navigates spondyloarthritis, comorbidities, and personal transformation with resilience, self-compassion, and a renewed sense of purpose.
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