The below is a third party research opportunity. SAA is not affiliated with the study, and is only sharing it as a service to the community.
The Spondylitis Association of America (SAA) is continuing our research study to better understand the roadblocks faced by patients in their journey to getting diagnosed with non-radiographic axial spondyloarthritis (nr-axSpA.)
We have successfully completed part I (one-on-one interviews with participants). We are now asking our community to take part in an online survey (part 2 of this study). Completion of part one is not required for completing this survey, and everyone who is eligible to take part is urged to do so.
Your input is invaluable to us and will go a long way to helping improve the experiences of other patients and shorten the time it takes to get diagnosed. The survey will take 10-20 minutes to complete and your responses will be kept confidential.
You may be eligible to participate if:
- You are 18 years or older
- You live in the U.S.
- A rheumatologist has diagnosed you with non-radiographic axial spondyloarthritis (nr-axSpA)
Please click here to start the survey.
Principle Investigator: Dr. Atul Deodhar, MD, MRCP
Project Coordinator: Dr. Sonam Kiwalkar, MD
IRB: Oregon Health and Sciences University (STUDY00020788)
This project has financial support from UCB, Inc.
Please contact Dr. Deodhar at 503-494-8637 with any questions or concerns about this survey. You may also email Dr. Deodhar at firstname.lastname@example.org or the project coordinator, Dr. Kiwalkar at email@example.com at the Oregon Health and Sciences University.