Meetings offer education, encouragement, emotional support, and allow for open discussion about managing and living with spondyloarthritis.
TBD
Southern Tier Church of Christ
351 E. Thurston St.
Elmira, NY 14901
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Please RSVP for this event to leader Penny at pennystoneras@gmail.com.
I live in upstate New York. I am a teaching assistant in public education who loves working with young children. I am married and have five grown children who are married. I enjoy biking, traveling, reading, quilting and spending time with all or any of my five grandchildren. I am also active in my church teaching Sunday school and helping with a financial peace class that helps people get out of debt.
Ankylosing Spondylitis became part of my life in 2005 when my 17 year old was diagnosed. It came as a total surprise and took a while to diagnose. I had never heard of this inflammatory disease before that but it has become a part of my daily life. I was diagnosed eight years later in 2013. It was a very frustrating time for me as several doctors tried to figure out what was wrong. I actually could not walk for a couple of months during that time. I am happy to say that with the correct treatment I am doing much better! I take it one day at a time and try to not to take things for granted – flare ups can come at the most inopportune time. It is my hope that this support group will provide valuable resources (which I continue to learn about) and encouragement to help anyone who is living with this inflammatory disease.
We’d love to have you join our team of passionate volunteers leading our spondylitis educational support groups! Learn more about how to get started here, and reach out to programs@spondylitis.org
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