Forty years ago, a very small but determined group of volunteers embarked on a journey to create a community where people impacted by a “disease with a funny name” could receive support, education, push for more funding for research to better understand the disease, and be represented within a very long list of social causes facing the American public. What they envisioned at that point and time was undoubtedly daunting and humbling. But their recognition that the needs for people impacted by spondyloarthritis were not being met, coupled with their determination, changed the landscape of the disease in this country, forever.
And 40 years later, the Spondylitis Association of America, lovingly known by members of our community as SAA, continues to stand as proof that a group of caring individuals can turn their hopes, dreams, and vision into something amazing and life changing.
"Being the first was not an easy path. I had a lot of challenging adventures along the way, but I always believed in asking people for advice and using their expertise. We needed to blaze a trail where no one else had. To do that, we had to push forward with confidence and courage."
“The first SAA support group met in my parent’s home 40 years ago. At the time, we really didn’t know what we were going to do, but we were excited to get people together.”
“My uncle saw an article about a support group meeting for people impacted by spondylitis. That’s where I met Jane. We would not be where we are today if not for her."
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