CAPES: A Unique Spondyloarthritis Educational Series for Patients and Physicians
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SAA has partnered with SPARTAN, GRAPPA, and NPF to develop and present a series of webinars and podcasts for clinicians and patients, to provide in-depth education on spondyloarthritis (SpA), including psoriatic arthritis (PsA). As a collective group of nonprofit organizations committed to improving research and understanding of our respective diseases, we’re excited to bring you this unique, collaborative project!
We focused our programs on four main topics: Juvenile Spondyloarthritis and Juvenile Psoriatic Arthritis, Understanding and Managing Pain and Fatigue in Spondyloarthritis and Psoriatic Arthritis, Spondyloarthritis and Psoriatic Arthritis Treatment Update, and finally, Does Changing Health Behaviors Help Your Arthritis? Lifestyle, Myths, and Solutions.
Together with top experts in the field of rheumatology, we developed state-of-the-art educational content in the form of webinars and podcasts, with separate programs geared toward patients and clinicians. We are also honored to feature the voices of members of the SpA and PsA communities, who generously shared their stories and experiences.
We hope you take some time to browse both the patient-focused and clinician-focused programs. Please reach out and let us know what you think, at programs@spondylitis.org.
Understanding and Managing Pain and Fatigue in Spondyloarthritis and Psoriatic Arthritis
Patient Webinar:
Join rheumatologists Philip Mease, MD, MACR and Ernest Choy, MD, FRCP as they discuss the latest scientific understanding of pain and fatigue in rheumatic diseases including SpA and PsA, and review the latest in management methods. In addition, they will discuss patient concerns about access to care, future health uncertainty, sleep quality, and more. The doctors will be joined by patients Minionette “Mini” Wilson and Melissa Leeolou as they discuss their experiences with SpA and PsA, their diagnoses, and their day-to-day management of pain and fatigue.
Clinician Webinar:
Join rheumatologists Philip Mease, MD, from the University of Washington and Seattle Rheumatology Associates, and Ernest Choy, MD, head of rheumatology and translational research at the Division of Infection and Immunity and Director of the Cardiff Regional Experimental Arthritis Treatment and Evaluation Center at Cardiff University School of Medicine, Wales (UK) to learn the latest information regarding the understanding and management of pain and fatigue. This webinar will provide attendees with an understanding of disease mechanisms in pain and cover why fatigue is a core outcome in rheumatic diseases including SpA and PsA. The causes of fatigue and how to assess and treat fatigue will be covered. Patients Minionette “Mini” Wilson and Melissa Leeolou will provide insights into their experiences with these diseases and their management of pain and fatigue.
Podcast:
Spondyloarthritis and Psoriatic Arthritis Treatment Update
Patient Webinar:
Join rheumatologists Atul Deodhar, MD, MRCP, and Anand Kumthekar, MD, for an in-depth discussion on the latest treatment options for spondyloarthritis and psoriatic arthritis. Viewers will learn how treatment, communication, and patient participation can improve outcomes for those who live with these diseases. This program will also feature the voices of Roz Tolliver, an ankylosing spondylitis patient and advocate, and John Latella, a psoriatic arthritis patient, who will share their medical journeys and how they have navigated their treatment decisions.
Clinician Webinar:
Join rheumatologists Atul Deodhar, MD, MRCP; Joerg Ermann, MD; and Philip Mease, MD, MACR, for this clinical program to update health care providers on the latest treatment options for spondyloarthritis (SpA) and psoriatic arthritis (PsA). Viewers will also hear from Roz Tolliver, an ankylosing spondylitis patient and advocate, and John Latella, a psoriatic arthritis patient, who will provide insights into how they have navigated their treatment decisions.
Podcast:
Juvenile Spondyloarthritis (JSpA) and Juvenile Psoriatic Arthritis (JPsA)
Patient Webinar:
Join rheumatologist Hema Srinivasalu, MD, along with SpA community members Wendy Olsder, Asad Khan, and Aamena Hameed as they discuss the spectrum of JSpA and JPsA, genetic risk factors, symptoms, and the appearances of and management strategies for these diseases. You’ll hear from patients and their families as they discuss their diagnoses, challenges, and what it means to live with JSpA.
Clinician Webinar:
Watch our clinician-focused webinar, presented by Dax Rumsey, MD, MSc, FRCP(C); Pamela Weiss, MD, MSCE; and Matthew Stoll, MD, PhD, MSCS. This webinar discusses the spectrum and classification of JSpA and JPsA, imaging pitfalls, the latest treatments, and disease management.
Podcast:
Does Changing Health Behaviors Help Your Arthritis? Lifestyle, Myths, and Solutions
Patient Webinar:
Join rheumatologists Elaine Husni, MD, MPH, and Leonard Calabrese, DO for an in-depth look at the lifestyle changes patients can make that can strengthen immune function and overall wellness. We’ll hear an evidence-based discussion of popular topics including diet, exercise, sleep, and stress reduction. We’ll also hear from Brandon Robert, an ankylosing spondylitis patient, and Brian LaFoy, a psoriatic arthritis patient, who will share the lifestyle changes they have made to improve their symptoms and health.
Podcast:
This activity is supported by an educational grant provided by Pfizer Inc.
Author:
GRAPPA (Group for Research and Assessment of Psoriasis and Psoriatic Arthritis), NPF (National Psoriasis Foundation), SPARTAN (Spondyloarthritis Research and Treatment Network), and SAA
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