Introducing CAPES: A New, Multifaceted Education Series for Patients and Physicians!

SAA has partnered with SPARTAN, GRAPPA, and NPF to develop and present a series of webinars and podcasts for physicians and patients, to educate them on spondyloarthritis (SpA) and psoriatic arthritis (PsA).

As a collective group of nonprofit organizations committed to improving research and understanding of our respective diseases, we’re excited to launch this unique, collaborative project, and we hope you’ll join us! 

See the below list of upcoming modules and topics and access archived presentations. https://capes.performedia.com/

November 2022 – Module 4: Changing Health Behaviors

Patient Webinar: Does Changing Health Behaviors Help Your Arthritis? Lifestyle, Myths, and Solutions

November 3, 2022: 7pm - 8pm EDT; 4pm - 5pm PDT

Join rheumatologists Elaine Husni, MD, MPH, and Leonard Calabrese, DO for an in-depth look at the lifestyle changes patients can make that can strengthen immune function and overall wellness. We’ll hear an evidence-based discussion of popular topics including diet, exercise, sleep, and stress reduction. We’ll also hear from Brandon Robert, an ankylosing spondylitis patient, and Brian LaFoy, a psoriatic arthritis patient, who will share the lifestyle changes they have made to improve their symptoms and health.

October 2022 – Module 3: SpA and PsA Treatment Update

Patient Webinar: Spondyloarthritis and Psoriatic Arthritis Treatment Update

October 5, 2022: 7pm - 8pm EDT; 4pm - 5pm PDT

Join rheumatologists Atul Deodhar, MD, MRCP, and Anand Kumthekar, MD, for an in-depth discussion on the latest treatment options for spondyloarthritis and psoriatic arthritis. Viewers will learn how treatment, communication, and patient participation can improve outcomes for those who live with these diseases. The program will also feature contributions from Roz Tolliver, an ankylosing spondylitis patient and advocate, and John Latella, a psoriatic arthritis patient, who will share their medical journeys and how they have navigated their own treatment decisions.

Clinician Webinar: SpA and PsA Treatment Update

October 19, 2022: 7pm - 8pm EDT; 4pm - 5pm PDT

Join rheumatologists Atul Deodhar, MD, MRCP, Joerg Ermann, MD, and Philip Mease, MD, MACR, in this CME accredited clinical program to update health care providers on the latest treatment options for spondyloarthritis (SpA) and psoriatic arthritis (PsA) patients. Viewers will also hear from Roz Tolliver, an ankylosing spondylitis patient and advocate, and John Latella, a psoriatic arthritis patient, who will provide insights into how they have navigated their own treatment decisions.

 

Accreditation Statement

This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of the National Psoriasis Foundation and SPARTAN, Spondylitis Association of American and GRAPPA. The National Psoriasis Foundation is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.

Designation of Credit

The National Psoriasis Foundation designates this live activity for a maximum of 1.5 AMA PRA Category 1 CreditsTM. Physicians should only claim credit commensurate with the extent of their participation in the activity.

September 2022 – Module 2: Pain and Fatigue

Clinician Webinar: Understanding and Managing Pain and Fatigue in Spondyloarthritis and Psoriatic Arthritis

September 15, 2022: 7pm - 8:30pm EDT; 4pm - 5:30pm PDT

Join rheumatologists Philip Mease, MD, from the University of Washington and Seattle Rheumatology Associates, and Ernest Choy, MD, head of rheumatology and translational research at the Division of Infection and Immunity and Director of the Cardiff Regional Experimental Arthritis Treatment and Evaluation Center at Cardiff University School of Medicine, Wales (UK) to learn the latest information regarding the understanding and management of pain and fatigue.

This webinar will provide attendees with an understanding of disease mechanisms in pain and cover why fatigue is a core outcome in rheumatic diseases including SpA and PsA. The causes of fatigue and how to assess and treat fatigue will be covered. Patients Minionette “Mini” Wilson and Melissa Leeolou will provide insights into their experiences with these diseases and their management of pain and fatigue.

Accreditation Statement

This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of the National Psoriasis Foundation and SPARTAN, Spondylitis Association of American and GRAPPA. The National Psoriasis Foundation is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.

Designation of Credit

The National Psoriasis Foundation designates this live activity for a maximum of 1.5 AMA PRA Category 1 CreditsTM. Physicians should only claim credit commensurate with the extent of their participation in the activity.

Patient Webinar:  Understanding and Managing Pain and Fatigue in Spondyloarthritis and Psoriatic Arthritis 

September 22, 2022: 7pm - 8:30pm EDT; 4pm - 5:30pm PDT

Join rheumatologists Philip Mease, MD, MACR and Ernest Choy, MD, FRCP  as they discuss the latest scientific understanding of pain and fatigue in rheumatic diseases including SpA and PsA, and review the latest in management methods. In addition, they will discuss patient concerns about access to care, future health uncertainty, sleep quality, and more. The doctors will be joined by patients Minionette “Mini” Wilson and Melissa Leeolou as they discuss their experiences with SpA and PsA, their diagnoses, and their day-to-day management of pain and fatigue.

Module 2: Pain and Fatigue Faculty and Participants

Melissa Leeolou:

Melissa was diagnosed with psoriasis as a baby and psoriatic arthritis as a young adult. She is originally from New York but now lives in California where she is in her third year of medical school at Stanford Medical School. Melissa has been volunteering with the National Psoriasis Foundation (NPF) for almost 10 years.

Minionette Wilson:

Minionette, or “Mini” as she is known, is a Spondylitis Association of America support group co-leader in Raleigh/Durham, North Carolina. She has had psoriasis since she was a baby, but due to various healthcare hurdles did not receive proper diagnoses of ankylosing spondylitis (AS) and PsA until her 40s/50s. Mini has struggled with pain and fatigue her whole life, with personal and career impacts. She has come up with dozens of “life hacks” that she shares with her support group members to perform daily functions while working around pain, fatigue, and range-of-motion challenges.

Ernest Choy, MD, FRCP:

Dr. Choy is head of rheumatology and translational research at the Division of Infection and Immunity and Director of the Cardiff Regional Experimental Arthritis Treatment and Evaluation (CREATE) Centre at Cardiff University School of Medicine, Cardiff, Wales, UK. He is also Honorary Consultant Rheumatologist at University Hospital of Wales and Clinical Lead of the Welsh Arthritis Research Network (WARN). Dr. Choy chaired the EULAR taskforce on developing recommendations for management and classification criteria for fibromyalgia in 2007 and is currently a member of the EULAR Quality of Care Committee. Dr. Choy has served as clinical expert to the National Institute for Clinical Excellence in the UK and many pharmaceutical companies. He has published widely on treatments for rheumatic diseases in major medical journals such as the New England Journal of Medicine and The Lancet.

Moderator, Philip Mease, MD, MACR:

Dr. Mease is Director of Rheumatology Research at the Swedish Medical Center and Providence St. Joseph Health and Clinical Professor at the University of Washington School of Medicine, Seattle, WA. He is a founder, past president, and now co-chair of GRAPPA’s Education Committee. His clinical practice is based at Seattle Rheumatology Associates. Dr. Mease earned his undergraduate and medical degrees at Stanford University, Stanford, CA, and completed his residency in internal medicine and a fellowship in rheumatology at the University of Washington School of Medicine. He has written more than 500 journal articles. 

July 2022 – Module 1: Juvenile SpA and PsA

Clinician Programs: Juvenile Spondyloarthritis (JSpA) and Juvenile Psoriatic Arthritis (JPsA) Webinar and Podcast

Watch our clinician-focused webinar, "Juvenile Spondyloarthritis (JSpA) and Juvenile Psoriatic Arthritis (JPsA)" presented by Dax Rumsey, MD, MSc, FRCP(C); Pamela Weiss, MD, MSCE; and Matthew Stoll, MD, PhD, MSCS. As the first of four topics covered in CAPES (Clinician and Patient Education Series), this webinar discusses the spectrum and classification of JSpA and JPsA, imaging pitfalls, the latest treatments, and disease management.

Watch the recording: https://capes.performedia.com/

Patient Programs: Juvenile Spondyloarthritis (JSpA) and Juvenile Psoriatic Arthritis (JPsA) Webinar and Podcast

Watch our patient-focused webinar, "Juvenile Spondyloarthritis (JSpA) and Juvenile Psoriatic Arthritis (JPsA)." In this recording, experts discuss the spectrum of JSpA and JPsA, genetic risk factors, symptoms, and the appearances of the diseases. In addition, we provide tips on managing these diseases, including the roles of medication, nutrition, and exercise as part of a comprehensive treatment plan. You’ll hear from patients and their families as they share their journeys, including challenges, successes, and hopes. Your registration will provide you with access to a portal that includes this presentation, as well as the on-demand recording, other program materials, resources, and more!

Watch the recording: https://capes.performedia.com/

This program is supported by an educational grant from Pfizer Inc.

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