Merced
Share:

Meetings offer education, encouragement, emotional support, and allow for open discussion about managing and living with spondyloarthritis.

Upcoming Meeting(s)

Saturday, May 23, 2020
2:00pm – 4:00pm

Virtual meeting, using Zoom!

https://us02web.zoom.us/j/89268766561?pwd=UG12aDY1WVViZWhOYXN2TzdJVXpCQT09

Meeting ID: 892 6876 6561
Password: 478182

Regular Meeting Location

Merced County Library 
Small Meeting Room
2100 O St.
Merced, CA 95340

Social Media

Join our social media channels:

Facebook: @spondylitis 

Twitter: @spondylitis 

Instagram: @spondylitis 

YouTube: Spondylitis

LinkedIn: Spondylitis Association of America

Topic: Roundtable Discussion - Living with AS During This Crisis

Leadership

About Roz, Merced's Support Group Leader

Roz, a native San Franciscan, is married and has five adult children and two grandchildren. A navy veteran, she recently moved to Merced, CA. She teaches English as a Second Language (ESL) to adults, and is on the board of the California Association of Teachers of English to Speakers of Other Languages. She co-led the Sacramento SAA support group with Charis Hill until December 2019, and she is excited about starting a new group in the Central Valley because she loves helping other spondies. She wants the meetings to be informative and supportive, because AS is a complicated and potentially debilitating disease.

AS runs in her family: her late father and brother had the disease, and she was finally diagnosed in February 2018 after having had symptoms for over 25 years. Since her diagnosis, she has become a patient advocate. She’s participated in support groups in-person and on social media, and she’s been featured in several AS awareness projects. She reads everything she can about this disease, and she enjoys using her newfound knowledge to advocate for herself and other AS patients.

Today, she manages her symptoms with a smorgasbord of a biologic (Cosentyx); occasional NSAIDS and cortisone injections; Biofreeze; CBD oil; daily stretching; regular exercise; regular massages; and lots of heat! She also takes her mind off her pain with her favorite pastimes, which include spending time with her family, listening to music, traveling, and playing trivia games, cards, dominoes, and pool. She especially enjoys watching standup comedy and satirical news shows, because she believes that laughter is truly the best medicine.

Want to Start a New Support Group?

We’d love to have you join our team of passionate volunteers leading our spondylitis educational support groups! Learn more about how to get started here, and reach out to programs@spondylitis.org