New York City
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Meetings offer education, encouragement, emotional support, and allow for open discussion about managing and living with spondyloarthritis.

Upcoming Meeting(s)

In-person meeting:
Friday, July 15, 2022
6:30 PM EDT

Location:
Amber Japanese Restaurant
1406 3rd Ave
New York, NY 10075

(SW corner of 80th St and 3rd Ave; closest subway stops are 77th St (6 line) or 86th St (4/5/6 lines)

The reservation will be under Sandra Voss.

To RSVP: please email SAAofNYC@gmail.com by Wednesday, July 13th at 9:00 PM. If you’re not able to RSVP by then, please come anyway and we can make room!

Virtual meeting, using Zoom:

Sunday, July 17, 2022
6:00 PM – 7:30 PM EDT

Location: virtual meeting, using Zoom!

Register in advance for this meeting:

https://us02web.zoom.us/meeting/register/tZUqceCgqD0uEtZ6HrVN3GN-LHkKmnf3QKXO

After registering, you will receive a confirmation email containing information about joining the meeting.

If you have any questions, please contact support group leader, Sandra Voss via email at SAAofNYC@gmail.com 

Social Media

Join our social media channels:

Facebook: @spondylitis 

Twitter: @spondylitis 

Instagram: @spondylitis 

YouTube: Spondylitis

LinkedIn: Spondylitis Association of America

Regular Meeting Location

  • TBD
  • The New York City group meets once per month. Because of the COVID-19 pandemic, the group has primarily been meeting virtually on Zoom. If weather permits and if COVID-19 cases have fallen, the group meets every other month for an outdoor, in-person meeting and on Zoom during the months in between in-person meetings. We hope to have regular in-person meetings again soon and plan to eventually try a hybrid meeting format so that group members can join both in person and via Zoom.

If you have any questions, please contact support group leader, Sandra Voss via email at SAAofNYC@gmail.com 

Topic: Roundtable Discussion

Leadership

Version 2

Sandra Voss

About Sandra, New York City's Support Group Leader

Sandra

Hi! I’m Sandra. I was diagnosed with Non-Radiographic Axial Spondyloarthritis in September 2015, and found it so helpful to join the NYC support group and meet others who understood what I was going through. I became a group leader in August 2017, and I love working with the group and witnessing the support and connections that it fosters. I’m a clinical social worker and became a yoga teacher in December 2020, and have also completed Level 1 Yoga for Arthritis training. If you have any questions about yoga for spondyloarthritis, let me know! Looking forward to meeting you.

About NYC Support Group

At our meetings, we hope to offer members a place to meet others with spondylitis, learn about resources, treatments, and strategies for managing the condition, and receive support with their challenges. We also welcome family members, friends, and significant others of people with spondylitis, who would like to learn more about how to support their loved ones.

Group Guidelines

If this is your first time joining us, welcome! We are excited to have you. To make sure that all meetings are a supportive, safe space for all, we’ve put together some group guidelines. Check it out!

1. Confidentiality. What is said in the group stays in the group. You can share general information with others outside the group, but please don’t use names or identifying information of members.
2. Respect. Treat other group members with respect and understanding
3. Remember that everyone’s experience is different, and what worked for you might not work for someone else. As we say in social work, everyone is an expert on their own life!
4. Give everyone a chance to speak. Try not to monopolize the discussion!
5. Ask a doctor. Remember that most of us (group leaders included) are not doctors, so be careful about giving or taking medical advice.

Want to Start a New Support Group?

We’d love to have you join our team of passionate volunteers leading our spondylitis educational support groups! Learn more about how to get started here, and reach out to programs@spondylitis.org