Meetings offer education, encouragement, emotional support, and allow for open discussion about managing and living with spondyloarthritis.
Virtual meeting, using Zoom:
Sunday, June 4, 2023
6:00 PM – 7:30 PM EDT
Location: virtual meeting, using Zoom!
Register in advance for this meeting:
https://us02web.zoom.us/meeting/register/tZ0rcumpqTIiEtEE9MKQ25RSW3o_urXLREkV
After registering, you will receive a confirmation email containing information about joining the meeting.
If you have any questions, please contact support group leader, Sandra Voss via email at SAAofNYC@gmail.com
Join our social media channels:
Facebook: @spondylitis
Twitter: @spondylitis
Instagram: @spondylitis
YouTube: Spondylitis
LinkedIn: Spondylitis Association of America
The New York City group meets once per month. Because of the COVID-19 pandemic, the group has primarily been meeting virtually on Zoom. If weather permits and if COVID-19 cases have fallen, the group occasionally meets for an outdoor, in-person meetup. We plan to eventually try a hybrid meeting format so that group members can join both in person and via Zoom.
If you have any questions, please contact support group leader, Sandra Voss via email at SAAofNYC@gmail.com
Hi! I’m Sandra. I was diagnosed with Non-Radiographic Axial Spondyloarthritis in September 2015, and found it so helpful to join the NYC support group and meet others who understood what I was going through. I became a group leader in August 2017, and I love working with the group and witnessing the support and connections that it fosters. I’m a clinical social worker and became a yoga teacher in December 2020, and have also completed Level 1 Yoga for Arthritis training. If you have any questions about yoga for spondyloarthritis, let me know! Looking forward to meeting you.
At our meetings, we hope to offer members a place to meet others with spondylitis, learn about resources, treatments, and strategies for managing the condition, and receive support with their challenges. We also welcome family members, friends, and significant others of people with spondylitis, who would like to learn more about how to support their loved ones.
If this is your first time joining us, welcome! We are excited to have you. To make sure that all meetings are a supportive, safe space for all, we’ve put together some group guidelines. Check it out!
1. Confidentiality. What is said in the group stays in the group. You can share general information with others outside the group, but please don’t use names or identifying information of members.
2. Respect. Treat other group members with respect and understanding
3. Remember that everyone’s experience is different, and what worked for you might not work for someone else. As we say in social work, everyone is an expert on their own life!
4. Give everyone a chance to speak. Try not to monopolize the discussion!
5. Ask a doctor. Remember that most of us (group leaders included) are not doctors, so be careful about giving or taking medical advice.
We’d love to have you join our team of passionate volunteers leading our spondylitis educational support groups! Learn more about how to get started here, and reach out to programs@spondylitis.org
Input your search keywords and press Enter.
