New York City
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Meetings offer education, encouragement, emotional support, and allow for open discussion about managing and living with spondyloarthritis.

Upcoming Meeting(s)

Sunday, November 1, 2020
7:30 pm

Details:

Virtual meeting, using Zoom!

Register in advance for this meeting:
https://us02web.zoom.us/meeting/register/tZApce2srz4jH9HTwjhSZpTTyxvzRnWlRX8z

After registering, you will receive a confirmation email containing information about joining the meeting.

Social Media

Join our social media channels:

Facebook: @spondylitis 

Twitter: @spondylitis 

Instagram: @spondylitis 

YouTube: Spondylitis

LinkedIn: Spondylitis Association of America

Regular Meeting Location

  • Alfred P. Sloan Foundation
    630 Fifth Avenue, Suite 2200
    (45 Rockefeller Plaza)
    New York, NY 10112

Topic: Roundtable Discussion

Leadership

Version 2

Sandra Voss

About Sandra, New York City's Support Group Leader

Sandra

Hi! I’m Sandra. I was diagnosed with Non-Radiographic Axial Spondyloarthritis in September 2015, after having back pain for about a year. I started going to the NYC support group in January 2017, and I found it so helpful to meet others who understood what I was going through. I became a group leader in August 2017, and I love working with the group and witnessing the support and connections that it fosters. I’m also a clinical social worker, and I’m passionate about the intersection between physical and mental health. Fun fact: I ride my bike all over the city and find that this really helps my back pain! I’m also a big fan of pilates and yoga, and will be finishing a 200-hour yoga teacher training program in December 2020 and plan to begin teaching yoga after that. Looking forward to meeting you!

About NYC Support Group

At our meetings, we hope to offer members a place to meet others with spondylitis, learn about resources, treatments, and strategies for managing the condition, and receive support with their challenges. We also welcome family members, friends, and significant others of people with spondylitis, who would like to learn more about how to support their loved ones.

Group Guidelines

If this is your first time joining us, welcome! We are excited to have you. To make sure that all meetings are a supportive, safe space for all, we’ve put together some group guidelines. Check it out!

1. Confidentiality. What is said in the group stays in the group. You can share general information with others outside the group, but please don’t use names or identifying information of members.
2. Respect. Treat other group members with respect and understanding
3. Remember that everyone’s experience is different, and what worked for you might not work for someone else. As we say in social work, everyone is an expert on their own life!
4. Give everyone a chance to speak. Try not to monopolize the discussion!
5. Ask a doctor. Remember that most of us (group leaders included) are not doctors, so be careful about giving or taking medical advice.

Want to Start a New Support Group?

We’d love to have you join our team of passionate volunteers leading our spondylitis educational support groups! Learn more about how to get started here, and reach out to programs@spondylitis.org