My name is Reevu Neogi. I am currently 23 years old and finishing up with my final year of medical school in the Ukraine, however, I was born and raised in India. I remember the first time I experienced the effects of Spondylitis, it was the year of 2011 and I was 17 years old at the time. I was at a sports event at my school, when suddenly I felt my legs go numb and I could not run anymore. I had to stop immediately and rush home. The very next morning I kept trying to stand up, but I could not get up. At first, I thought it was a muscle spasm or something similar but even with my mother’s help and trying for 30 minutes I was unable to. It was then I realized that something was terribly wrong.
After visiting a doctor and getting tests done I was diagnosed with Ankylosis Spondylitis. I was lucky enough to have the funds for biologics, specifically Monoclonal Antibody Infliximab, which has helped me significantly with pain management. I hope that one day the prices for disease modifying agent treatments become more affordable and available for those that need it. Even with the treatments, the unexplainable pain at times can be debilitating and unfortunately it has become a part of my life never to leave. It feels like the only people going through it can truly understand and relate to what I am going through.
We embed Facebook Comments plugin to allow you to leave comment at our website using your Facebook account. It may collects your IP address, your web browser User Agent, store and retrieve cookies on your browser, embed additional tracking, and monitor your interaction with the commenting interface, including correlating your Facebook account with whatever action you take within the interface (such as “liking” someone’s comment, replying to other comments), if you are logged into Facebook. For more information about how this data may be used, please see Facebook’s data privacy policy: https://www.facebook.com/about/privacy/update.
Robert Nance lived with severe ankylosing spondylitis in addition to other health complications. He sadly passed away on September 3, 2023, at the age of…
This website uses cookies so that we can provide you with the best user experience possible. Cookie information is stored in your browser and performs functions such as recognising you when you return to our website and helping our team to understand which sections of the website you find most interesting and useful.
Strictly Necessary Cookies
Strictly Necessary Cookie should be enabled at all times so that we can save your preferences for cookie settings.
If you disable this cookie, we will not be able to save your preferences. This means that every time you visit this website you will need to enable or disable cookies again.
Action Required!
We embed Facebook Comments plugin to allow you to leave comment at our website using your Facebook account. It may collects your IP address, your web browser User Agent, store and retrieve cookies on your browser, embed additional tracking, and monitor your interaction with the commenting interface, including correlating your Facebook account with whatever action you take within the interface (such as “liking” someone’s comment, replying to other comments), if you are logged into Facebook. For more information about how this data may be used, please see Facebook’s data privacy policy: https://www.facebook.com/about/privacy/update.
Accept Decline