My pursuit of dance has carried me across borders and through many roles—choreographer, professor, and arts administrator. After earning an MFA in Dance in New Mexico, I continued my
practice through choreography residencies and master classes in Spain and New York City. I’ve taught as a visiting dance professor at universities in different states and presented my research at an international conference in Mexico.
Along the way, I’ve also had some really challenging injuries and flares where I’ve had to recover. However, I have traveled a lot in remission, and traveling presents unique challenges and things to consider for people living with spondyloarthritis and autoimmune diseases. I’ve had smooth travel experiences and turbulent travel experiences and have learned a lot along the way.
From packing routines to what I look for in accommodations, these tips will hopefully help others with spondyloarthritis (or similar conditions) travel with more ease and confidence.
Always pack medication in your carry-on.
Never, ever pack it into checked luggage. I always bring my medication in my carry-on, along with a reliable ice pack. I wait until after TSA to fill it, usually at a coffee shop where I ask for a cup of ice. It helps keep my medication cold during the flight without the hassle of getting flagged for carrying liquids.
Invest in a travel cooler made for medication.
There are coolers designed specifically for people who need to keep meds cold while traveling. These are super useful if you’re on the go for long periods. Make sure your hotel or Airbnb fridge is working. One time, I got to a hotel, put my medication in the fridge, and later realized the fridge wasn’t even turned on. Now, the moment I arrive, I check to see that the fridge is not only plugged in but also cold. If you’re staying at an Airbnb, message the host ahead of
time and let them know you’re traveling with medicine that needs refrigeration.
Plan for safe disposal of used injection pens.
Used pens can confuse TSA agents. I’ve been stopped before because they thought I had a dangerous sharp object in my bag. If you’re in Europe, pharmacies often have special bins for disposing of used medical supplies. In the U.S., it’s more complicated. I’ve called local hospitals and arranged to drop them off, or depending on where you are, you can put the used pens in taped-up sharps containers and put them in the regular trash. Just don’t wait until you’re at the airport to figure this out.
Get an insurance plan that actually covers you and your condition.
A travel insurance agent once told me that I wouldn’t be able to get insurance because of AS. I didn’t accept that. After a ton of calls and digging, I found GeoBlue Voyager Choice, which does
cover pre-existing conditions. It gave me access to English-speaking doctors via telehealth and even covered physical therapy when I got hurt abroad. (Editor’s note: As of 10/1/25, GeoBlue has rebranded to Blue Cross Blue Shield Global Solutions.)
Use disability assistance at airports when needed.
I’ve flown while injured or flaring, and there’s no shame in asking for help. If you’re flaring, can’t lift your suitcase, or just aren’t moving well, request disability assistance. You can often set it up when booking your ticket, but if things change mid-trip, request it at check-in. Bring a doctor’s note too; not everyone understands invisible disability.
Pack for your body’s needs.
If you need a heat pack, a cushion, compression socks, bring them. These small items can make a huge difference on long flights. Even if you forget something, most pharmacies abroad will carry basics.
Get a medication override if you’re away long-term.
I have traveled for months at a time. I’ve been able to get an override from my doctor and pharmacy to bring extra medication. Though most medications cannot be mailed internationally, if you’re working temporarily in another state, ask about mail-order options.
Don’t forget your meds in the fridge!
The night before a trip, I pack everything, put my meds in the fridge, and stick a big note on the front door that says DON’T FORGET MEDS. It sounds simple, but when you’re running on
adrenaline and trying to make a flight, it’s easy to overlook the most important thing.
Beyond Travel
These last two notes may not be travel-specific, but they’ve been essential for me in living with AS, especially as an active person working in a physical field: Listen to your body; your recovery might not look like everyone else’s. As a dancer, I had to learn that recovery time with AS is different. If you’re flaring or injured, be patient with yourself. Find a provider who understands athletes’ bodies and, if possible, someone familiar with AS in athletes or performers. I once found a doctor who had experience with both, and it made a huge difference.
Working towards balance and recovery is a multifaceted process that incorporates mental health, physical health, nutrition, spirituality, etc. It’s like you’re a diamond and need to polish each of the facets to shine your brightest. Be patient for the biologic to work. Listen for clarity in your body and when there’s clarity in your skeleton and body, then you can build upon a solid foundation of health.
If the pain isn’t going away, get checked. Some people go years without a diagnosis. If you’re dealing with joint or spinal pain that’s not healing on a normal timeline, especially after injury, ask to see a rheumatologist. Request blood work and imaging. Spondyloarthritis isn’t always obvious, even to trained professionals.
Final Thoughts
I was once told directly that no insurance would cover me because of my condition. But I kept researching and asking questions until I found solutions. Don’t give up, and don’t let other people limit you. It’s not about doing everything perfectly. It’s about finding what works for your body so you can keep doing the things you love, wherever they may take you.
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