Welcome to our virtual community! Start by browsing through the personal stories featured here.
We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project.
We’d love your story as well! Send it to us at Programs@spondylitis.org
Are you interested in being a part of SAA Storytellers, Your Stories on Stage?
SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).
As I looked around the room watching the other beginner “Yogis” doing the relatively easy movements and positions that I was struggling so hard to do, I noticed a significant difference between myself and others who physically…
Ankylosing Spondylitis brings change, and most of it is bad, or really bad, depending on your point of view. I’m not describing physical pain, as we all know far too well what that’s all about. What I’m…
One Friday evening, a day like any other, I fixed a salad for dinner, watched television, and then…
Donald Ray Hogan, aka Donnie, is a fellow patient of ankylosing spondylitis. What most don't know is Donnie is Anna Nicole Smith’s younger brother (they are half siblings on their father’s side.)
The first time I felt a flare up was after a softball game, in which I lost complete function of my right arm.
I was finally diagnosed with Ankylosing Spondylitis in 2010 when I was in my late forties. By then, my back pain had become my constant…
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