Welcome to our virtual community! Start by browsing through the personal stories featured here.
We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project.
We’d love your story as well! Send it to us at Programs@spondylitis.org
Are you interested in being a part of SAA Storytellers, Your Stories on Stage?
SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).
I love to ride motorcycles. Feeling my body in motion on any type of two-wheeled contraption is a deep-seated passion that started with the first…
Learning to accept my body for what it is and how it behaves is how I survive daily life with ankylosing spondylitis. It is important for me to listen to my body. When it is feeling better,…
It came down to a matter of taste for Muhammad Asim Khan,…
The first time I walked into a tae kwon do class, I walked in with my cane and my little dog. Master Evan Nixon, the owner of Mellennia Tae Kwon Do, thought I was just there to…
By the year 2000 I was noticeably “bent over” in my upper thoracic and cervical spine. The local, well-regarded neurosurgeon said he could “straighten me up?”, but the mortality rate was approximately 50%. His last words to…
At the time I received my diagnosis, I was on the brink of my twentieth birthday. I was a healthy and fit young man, just starting my college basketball career, looking forward to a long life of…
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