Community Voices
Share:

Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project. 

We’d love your story as well! Send it to us at Programs@spondylitis.org

Tell A Story with SAA Storytellers, Your Stories on Stage! Send Us Your Story Pitch!

Are you interested in being a part of SAA Storytellers, Your Stories on Stage?

SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).

ByFion

My AS Is a Chameleon

I started having hip pain that came and went when I was around 26. That was 13 years ago. The pain was so severe that…

Read more
ByHelgi Olafson

Acceptance and Adaptation

Helgi Olafsen is a spondyloarthritis warrior who is also a seasoned trail runner who competes at the highest levels of the sport and uses the exposure he garners to support the causes he believes in. The Triple…

Read more
BySuzanne Knauer 

Overseas Rollercoaster: My COVID-19 Journey 

This is my story about having AS and being infected with COVID-19. 

Read more
ByTom House

I Had COVID-19

I had COVID-19. Here is how that went. 

Read more
ByKatie Phares

My Journey to Hope

My word of advice to those still looking for answers: Do not give up or give in. If you feel something is being overlooked or…

Read more
ByGail Wright

Avoiding the ER Rollercoaster

In December of 2013, that all changed when I experienced my first bout of costochondritis that led to my diagnosis of AS. Since 2014, I’ve gone through five lumbar surgeries, bilateral carpal tunnel releases, a…

Read more
1 5 6 7 8 9 20