Welcome to our virtual community! Start by browsing through the personal stories featured here.
We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project.
We’d love your story as well! Send it to us at Programs@spondylitis.org
Are you interested in being a part of SAA Storytellers, Your Stories on Stage?
SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).
I never expected to lose my mobility, but that is what happened in July of 2014 when my body gave out on me and I could no longer move the way I used to. Year by year,…
I was walking between classes in school one day when all of a sudden I felt extreme pain in my hip and couldn’t walk any further. I’d been very healthy up to this point, a school sprinter…
Hello, my name is Kristen and I’m 31. I’ve debated for a long time about a sharing my story because I wondered how I was going to tell it? Who would relate? Would anyone benefit from hearing…
The pain and stiffness of this disease, and the severity of my other conditions (I also have Ulcerative Colitis, fibromyalgia, and severe Gastroparesis) have prevented me from continuing to work in my dream vocation as a hospital…
My name is Yaakov Aharon Lewi which is Hebrew for Jacob Aaron Levi. I am 42 years of age. Not only does my name have a religious meaning but it's a family legacy going back thousands of…
Part of sharing my story is also admitting I don’t have it all figured out. Yeah, I love to be in control, but as anyone who fights this condition knows you don’t always have the last word.…
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