Community Voices
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Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project. 

We’d love your story as well! Send it to us at Programs@spondylitis.org

Tell A Story with SAA Storytellers, Your Stories on Stage! Send Us Your Story Pitch!

Are you interested in being a part of SAA Storytellers, Your Stories on Stage?

SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).

ByJim Weatherhead

My Surreal and Deeply Emotional Day

I did not see this coming. I bubbled up with tears of joy as I left a meeting room this afternoon. Here is the story...

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ByHelen Scharber

Comedy or Tragedy?

How to tell my story of AS… Is it a tragedy - a story of pain, loneliness and despair? Or is it a comedy, featuring ridiculously incompetent...

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ByKatie Allen

Running for Inspiration

Just after 11:30 AM on June 2, 2013, I crossed the finish line at the Deadwood Mickelson Trail Marathon in Deadwood, South Dakota. In...

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ByAmanda Carroll

My Weakness, My Strength

I remember the day I found out I had ankylosing spondylitis. I remember the exact moment so clearly… I was in my office at work;…

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ByMaya Klauber

Through Sickness and Health

John and Maya’s paths first crossed near Rochester, New York at Sunshine Camp—an amazing, week-long escape for children living with muscular dystrophy. They met in…

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ByJennifer Visscher

Face 0365

Jennifer Dye Visscher Hi everyone, my name is Jenna and I have Ankylosing Spondylitis. My story is similar to so many but I’ve had a very difficult time trying to figure out how to put it down…

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