Community Voices

My experience with Rheumatologists wasn’t great. I remember one saying “we don’t know what causes it, 30% of people will have chronic RA, 30% of people will only have one flare, 30% of people will have it…

The first time I complained to my doctor about pain in the morning was around 16.  His response was “Most people wake up with some pain in the morning. It’s completely normal”. 

Jen Johnson-Crosby Many of you may or may not know about the medical issues that have been going on within my body. They have changed my life in so many ways. I am an LCH WARRIOR and…

My name is Gillian and I have been living with Ankylosing Spondylitis all my life, one way or another. As a child, I was aware my dad wasn’t the same as other dads, he was bent right over,…

I was first diagnosed with ankylosing spondylitis when I was 12 years old. I remember being outside at recess with terrible back pain that would have me almost in tears. I knew there was something wrong and…

Hello, my name is Don Markham and I was formally diagnosed with ankylosing spondylitis in 2014 after a major flare. Like a lot of us, I had never heard of ankylosing spondylitis (AS) before this diagnoses. I…