Welcome to our virtual community! Start by browsing through the personal stories featured here.
We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project.
We’d love your story as well! Send it to us at Programs@spondylitis.org
Are you interested in being a part of SAA Storytellers, Your Stories on Stage?
SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).
When my son was diagnosed with Ankylosing Spondylitis at 18 in January 2024, a difficult and deeply emotional…
I was once told directly that no insurance would cover me because…
I’d like to believe that someday I’ll be brave enough to live that way in the real world. But until then, I’ll keep wearing the…
I first got involved with the Spondylitis Association of America (SAA) when…
My philosophy is “Don’t wait for miracles — create them yourself. Discipline, analysis, activity, and belief in your…
I first started having what I later realized were AS events as a student pilot in the Air…
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