Community Voices
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Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project. 

We’d love your story as well! Send it to us at Programs@spondylitis.org

Tell A Story with SAA Storytellers, Your Stories on Stage! Send Us Your Story Pitch!

Are you interested in being a part of SAA Storytellers, Your Stories on Stage?

SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).

Donations by members of the SAA, including our corporate member Amgen, support our programs and services.

The Spondylitis Association of America is solely responsible for all of the content hosted on spondylitis.org

ByHeidi Waltz

Your Stories: Diet and Exercise: Playing the Long Game

A few years ago, I wrote about how changing my diet and exercise habits completely shifted my lifestyle…

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By/u/ankylospankylo

Your Stories: A Cat, a Dog, and a Better Bandage:…

If you're familiar with my injection day posts, you may know me…

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BySandy Beekhuizen

Your Stories: Parenting a Teen With AS

When my son was diagnosed with Ankylosing Spondylitis at 18 in January 2024, a difficult and deeply emotional…

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ByJustice Miles

Your Stories: On the Move: A Dancer’s Guide to Traveling…

I was once told directly that no insurance would cover me because…

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ByAnonymous

Your Stories: The Mask I Wear

I’d like to believe that someday I’ll be brave enough to live that way in the real world. But until then, I’ll keep wearing the…

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ByPaula Olsiewski

Your Stories: Research is the Remedy: Navigating Illness, Science, and…

I first got involved with the Spondylitis Association of America (SAA) when…

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