Welcome to our virtual community! Start by browsing through the personal stories featured here.
We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project.
We’d love your story as well! Send it to us at Programs@spondylitis.org
Are you interested in being a part of SAA Storytellers, Your Stories on Stage?
SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).
My name is Sasha and I am a 26-year-old living in Sydney, Australia. My ankylosing spondylitis (AS) journey began just over six years ago when I was walking to a university class and had a flare-up so…
Antoinette is a 10 year old girl suffering from Ankylosing Spondylitis. At just two and a half years old, Antoinette would wake up in the middle of the night screaming and saying bugs were biting her back.…
My name is Mary Jo Bacorn and I want to share my ankylosing spondylitis (AS) journey. In retrospect, I likely had AS since childhood. I was…
When I was younger, I played baseball. I would often be sidelined…
I love to ride motorcycles. Feeling my body in motion on any type of two-wheeled contraption is a deep-seated passion that started with the first…
Learning to accept my body for what it is and how it behaves is how I survive daily life with ankylosing spondylitis. It is important for me to listen to my body. When it is feeling better,…
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