Welcome to our virtual community! Start by browsing through the personal stories featured here.
We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project.
We’d love your story as well! Send it to us at Programs@spondylitis.org
Are you interested in being a part of SAA Storytellers, Your Stories on Stage?
SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).
By the year 2000 I was noticeably “bent over” in my upper thoracic and cervical spine. The local, well-regarded neurosurgeon said he could “straighten me up?”, but the mortality rate was approximately 50%. His last words to…
At the time I received my diagnosis, I was on the brink of my twentieth birthday. I was a healthy and fit young man, just starting my college basketball career, looking forward to a long life of…
Ankylosing Spondylitis What the heck is that? I can’t even say it. (Pronounced ank-kih-low-sing spon-dill-eye-tiss)
Yay! I have a chronic, debilitating, painful, and incurable disease! My lifelong nightmare was over when I was diagnosed with Ankylosing Spondylitis and prescribed medication…
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