Community Voices
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Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project. 

We’d love your story as well! Send it to us at Programs@spondylitis.org

Tell A Story with SAA Storytellers, Your Stories on Stage! Send Us Your Story Pitch!

Are you interested in being a part of SAA Storytellers, Your Stories on Stage?

SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).

ByPhil Donlay

Are You Sure It’s Just A Flare?

One Friday evening, a day like any other, I fixed a salad for dinner, watched television, and then…

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ByDonnie Hogan

Donnie Hogan

Donald Ray Hogan, aka Donnie, is a fellow patient of ankylosing spondylitis. What most don't know is Donnie is Anna Nicole Smith’s younger brother (they are half siblings on their father’s side.)

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ByLydia Harris

Lydia Harris

The first time I felt a flare up was after a softball game, in which I lost complete function of my right arm.

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ByTheresa Silva

Managing AS in the Workplace

I was finally diagnosed with Ankylosing Spondylitis in 2010 when I was in my late forties. By then, my back pain had become my constant…

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ByReevu Neogi

Reevu Neogi

I remember the first time I experienced the effects of Spondylitis, it was the year of 2011 and I was 17 years old at the time.  I was at a sports event at my school, when suddenly…

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ByCindy

Cindy

All of your stories are inspirational in their own way. Here is an abbreviated version of my story. I hope that my story will help educate and inspire someone.

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