Welcome to our virtual community! Start by browsing through the personal stories featured here.
We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project.
Tell A Story with SAA Storytellers, Your Stories on Stage!
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SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).
Jeannette Anne Hayes As many others with ankylosing spondylitis, I’ve become passionate about helping raise awareness. It’s my hope (our hope) that future generations will receive early diagnosis and treatment before permanent damage is done to the…
Char My name is Char and I’m a mom of two of the most amazing daughters on the planet, a wife to my best friend and soul mate, a dancer, a personal trainer, a group fitness instructor…
Alan Beaulieu My name is Alan Beaulieu. I am 29 years old and was just recently, within the past few months, diagnosed with Ankylosing Spondylitis (AS). My story begins like so many others’ that suffer from this…
My name is Summer. I was diagnosed with AS in 2016 but that was far from the beginning of my journey. It all started 19 years ago, or as best I can figure it did. It always…