Community Voices
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Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project. 

We’d love your story as well! Send it to us at Programs@spondylitis.org

Tell A Story with SAA Storytellers, Your Stories on Stage! Send Us Your Story Pitch!

Are you interested in being a part of SAA Storytellers, Your Stories on Stage?

SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).

ByMarcia Freeman

Finding Joy and Healing through Yoga Practice

Marcia D. Freeman, M.A. is a Doctoral Student at Ball State University and has been an Ordained Nazarene…

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BySarah Ziegler

A Story of Hope – You Are Not Alone

I grew up extremely active, and played soccer starting at five years old, all the way through college.…

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ByJulie Nielsen

Your Stories: Pink Horns, Project Management, and Radiofrequency Magic

We have a job to do. We must do what we can to manage our physical trajectories, knowing…

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ByDana Hall, LCPC, MA, TF-CBT 

Navigating Chronic Illness And The Holidays

By Dana Hall, LCPC, MA, TF-CBT Chronic illness is woven into the fabric of our lives, and the…

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ByGeoff Lindsay, CYT, and Jamie Boder, CYT

Your Stories: Why We Founded Yoga for AS

By Geoff Lindsay, CYT, and Jamie Boder, CYT…

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ByMimi

You Are Not Alone

A poem by Mimi   You are not alone You with the chronic pain the unknown, sometimes un-nameable disease plaguing your bones, your insides, your joints   You who are up at night wondering if it will…

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