Community Voices
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Welcome to our virtual community! Start by browsing through the personal stories featured here.

We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project. 

We’d love your story as well! Send it to us at Programs@spondylitis.org

Tell A Story with SAA Storytellers, Your Stories on Stage! Send Us Your Story Pitch!

Are you interested in being a part of SAA Storytellers, Your Stories on Stage?

SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).

ByJames Magdaleno

The Bully

We all have a Bully in our lives, whether it be a physical person or in the form of pain or anguish, but we all have one. Since childhood my Bully has taken on many forms and…

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ByJessica Baird

Demons

The long road to being diagnosed took a toll on my mental health, even though I have not been officially diagnosed with any mental health issues. The effects of being misdiagnosed and being told I have cancer…

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ByTom Contrino

Face 101

I have AS, I deal with it. We all know the challenges, I promised I would never miss a day of work due to it, I have kept my promise to myself and still work actively as…

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ByPhil Donlay

The Anniversary

The Philip Donlay Guest Column: The Anniversary  This is the third and final installment of a series of stories from SAA member and bestselling novelist, Philip Donlay. We printed his previous two pieces, “Are You Sure It’s…

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ByBrad Aspey

Brad Aspey

As I looked around the room watching the other beginner “Yogis” doing the relatively easy movements and positions that I was struggling so hard to do, I noticed a significant difference between myself and others who physically…

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ByPhil Donlay

The Platypus

Ankylosing Spondylitis brings change, and most of it is bad, or really bad, depending on your point of view. I’m not describing physical pain, as we all know far too well what that’s all about. What I’m…

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