Welcome to our virtual community! Start by browsing through the personal stories featured here.
We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project.
We’d love your story as well! Send it to us at Programs@spondylitis.org
Are you interested in being a part of SAA Storytellers, Your Stories on Stage?
SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).
Robert Nance lived with severe ankylosing spondylitis in addition to other health complications. He sadly passed away on September 3, 2023, at the age of…
Karen Ladenheim takes Humira for ankylosing spondylitis, Crohn’s disease, and uveitis. She is a mechanical engineer who works…
Karra Eloff is the author of The Chronic Pain Couple: How to…
Sarah Louden, MHA, MBA is the Founder and…
My story begins in the early 1980s. I like to think I…
My name is Mia Rust, and I was diagnosed with ankylosing spondylitis…
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