Welcome to our virtual community! Start by browsing through the personal stories featured here.
We have organized these stories into two categories: Your Stories – stories sent to us at the Spondylitis Association of America – and selections from The Faces of Ankylosing Spondylitis project.
We’d love your story as well! Send it to us at Programs@spondylitis.org
Are you interested in being a part of SAA Storytellers, Your Stories on Stage?
SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – all are welcome!).
In 2018, I was diagnosed with ankylosing spondylitis and other related diseases. While there was a sense of relief that I finally received answers, I…
My name is Jessica Thomas, and I am a wife, a mother, a daughter, a sister, a friend…
Hi, my name is Shane Derbyshire. I am a chiropractor from Norwich (in the UK) and I was…
I don’t like having Ankylosing Spondylitis. It’s a crummy affliction. It hurts and makes my life miserable, painful, and then I resort to profanity. No really, I literally use every bad word I know and for a…
I started having hip pain that came and went when I was around 26. That was 13 years ago. The pain was so severe that…
Helgi Olafsen is a spondyloarthritis warrior who is also a seasoned trail runner who competes at the highest levels of the sport and uses the exposure he garners to support the causes he believes in. The Triple…
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